I bet most of you are thinking: First Facebook. Then Twitter? Now a blog? Boy, she sure does have a lot of time on her hands!
The truth is that the journey David and I are about to embark on is one that we feel totally unprepared for. We are excited at the idea of a little one but so many things need to fall into place between now and then. A lot of research. Many tests. Financial stress. Insurance woes. Are we really prepared for this?
Probably not but we have each other and we have our Faith in God. It's so hard not to think of all the "what ifs" right now. I'm constantly thinking of baby these days. I'm constantly reminded how precious they are. I'm also reminded of all the hurt and heartache that we might face. It's a lot to take in but I've been trying to pray when these feelings overwhelm me.
So here's the deal for those of you that haven't heard my story. I was born with Treacher Collins Syndrome. It is a mild, spontaneous (as far as we know) form. Growing up I had surgeries to repair my cleft palate and in high school, I had reconstructive surgeries which included my jaw, cheekbones, and eyes. My Mom, Dad, and I used to attend Cleft Palate Clinics where I'd meet a variety of specialists to discuss my treatment plan. In high school, I remember meeting with a geneticist that told me that I'd have a 50/50 chance of passing TCS to my children. This hit me very hard and it's something that I've struggled with since then. Imagine my pure delight when I found out about the different procedures out there to avoid certain genetic issues! I'll be discussing in more detail these procedures! I'm still in the beginning phase of research at this point!
So I hope you all are ready for this! I'm hoping that I will meet other people that might be going through the same thing. I'm also hoping to provide information for my fellow TCS ladies! I know a few of you are trying to decide what baby route you'll take!
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I wish you all the luck in the world! Keep me updated!
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